What is Alpha-1?
Alpha-1 Antitrypsin Deficiency (Alpha-1) is a genetic (inherited) condition – it is passed from parents to their children through their genes. Alpha-1 may result in serious lung disease in adults and/or liver disease at any age.
For each trait a person inherits, there are usually two genes; one gene comes from each parent. People with Alpha-1 have received two abnormal alpha-1 antitrypsin genes. One of these abnormal genes came from their mother and one from their father.
I was diagnosed in 2000 with Alpha 1 but of course naturally as it is a genetic condition have had it my entire life of which did not come to arise until the illness of my youngest daughter regarding liver failure where I flew to the Children’s Center in Ohio to have surgery and liver failure treated in September of 2001.
Myself and several family members are Alpha 1 carriers and all found out in 2000. I see a primary care physician and pulmonologist on a regular basis for the diagnosis of Alpha 1.
I am a carrier of Alpha 1 and am on full disability by and through the Newton County Social Security Disability courthouse. The decision was fully awarded by the Social Security Disability judge in the matter.
I am attempting to raise a great awareness of Alpha 1 in my online communities and in my hometown this Autumn.
I also have an 11 year anniversary of recovery from marital abuse, marital discord, depression and codependency as the “caregiver” along with PTSD from marital abuse and parental alienation even given justice has been served in the court’s no justice and no peace has been served between me and my girls personally. I often blog of my story regarding my girls and if you happen to be a part of my life you are fully aware of just how much I love my girls and my son and how big of an advocate for children I truly am. Even given Mr. Sasser has never had not complaint one nor a question, hint, suggestion, implication nor accusation as to any wrong doing on my behalf as a mother nor as a wife he is still insistent upon alienating me from my four girls and keeping us separated at all costs out of pure hatred and revenge of my finally leaving him for good in 2004 with the purchase of my own home near Jackson Lake in Covington, Ga at that time.
I see a therapist, doctor and a private psychiatrist on a regular basis for my mental diagnosis and it is absolutely necessary for me to maintain my appointments and keep current with my prescriptions.
I have been working for the last year as a nursing assistant and have made application for my Certified Peer Specialist certification which requires the following:
1100+ Georgia Certified Peer Specialists Since October 2001
Since 2001 to present
I have written often of becoming a Certified Peer Specialist to include the following requirements:
> Candidates must have diagnosis of mental illness or a dual diagnosis of mental illness and addictive disease and must desire to identify themselves as a person with mental illness current or former consumer of mental health services.
> Applicants must hold a high school diploma or GED and may be requested to provide a copy of this document.
> Must demonstrate strong reading comprehension and written communication skills as indicated on their responses on the pre – test which is part of the application.
> Must have demonstrated experience with leadership, advocacy or governance.
> Must be well grounded in recovery
These facts are taken directly from the Certified Peer Specialist brochure.
The motto of the CPS being “Each One Reach One.”
Becoming a CPS is my next goal including a blog to book endeavor of mine from my blogs at The Covington News.
I attend church at Eastridge Community Church in Covington on Thursday for Celebrate Recovery and on Sunday mornings but have been very limited in my time at church due to my auto problems. I have now missed several Sundays due to not having an auto at this time.
As time approaches for my follow up with pulmonology and for my mental health and in keeping all appointments and picking up prescriptions and attending church services an auto is necessary as I feel as though I am already wearing my welcome out with a few church ministry partner’s and close and dear friends who have been helping me. I have been independent and self – sufficient for 10 plus years now and have been single handedly taking care of myself and helping greatly in my son Tyler’s life.
I hope to raise awareness for Alpha 1 given I live in “The Hollywood of The South” and can bring much to the table in light of diagnosis and the journey of being an Alpha 1 carrier and enlighten many of my mentors and individuals as to being properly tested for Alpha 1 and advocate for testing of Alpha 1 during pregnancy and/or at birth so as not to miss out on knowing your diagnosis until your adulthood as I have.
I have given a couple of different websites to read my story further and hope that you will give me a moment of your time and read and share my story with others. My walk in recovery of Alpha 1 with depression and anxiety.
Thank you for allowing me to share and please follow up at these links for more on my life. I will be updating this page daily so please click on the See More link for daily updates.
I will also be opening a bank account at United Community Bank with Ms. Dawn Hayes Dysart of United Community Bank with the funding from the GoFundMe funds that I receive. Thank you again for allowing me to share.